Promoting Partnerships Between Patient Advocacy Groups and Researchers to Improve Autism Research

SIG Leaders: Alycia Halladay & Shafali Jeste SIG Co-Leader: Vidya Saravanapandian Advances in genetic testing have resulted in the discovery of multiple rare variants that increase the risk for autism spectrum disorder (ASD) and related neurodevelopmental disorders. Families affected by these rare disorders have established Patient Advocacy Groups (PAGs). This SIG provides a platform for cross-talk and collaboration to occur between PAGs and researchers in a systematic and productive manner. Topics covered will include infrastructure needs, communication with families, and coordination of efforts.