INSAR 2018 Annual Meeting: Family Issues and Stakeholder Experiences

11:30 AM

131 A Qualitative Exploration of the Female Phenotype and Experience of Autism Spectrum Disorder
V. L. Milner H. R. McIntosh E. Colvert F. Happé

11:30 AM

146.132

132 A Virtual Resiliency Treatment for Parents of Children with Autism: A Randomized Pilot Trial
K. Kuhlthau R. A. Millstein C. M. Luberto G. K. Perez O. Lindly L. Traeger E. Chad-Friedman J. Proszynski E. Park

11:30 AM

146.133

133 Addressing Quality of Life Priorities in Children and Adolescents with Autism Spectrum Disorder
L. Morán L. E. Gomez M. Á. Alcedo V. B. Arias M. A. Verdugo

11:30 AM

146.134

134 Adolescents with Autism Spectrum Disorder and Their Caregiver’s Perspectives on the Adolescents' Sexuality and Relationships
N. C. Cheak-Zamora M. Teti A. Maurer-Batjer

11:30 AM

146.135

135 An Examination of the Parentification and Infantilization Experiences of Typically-Developing Siblings of Individuals with Autism Spectrum Disorder
A. K. Nuttall W. J. Chopik F. M. Hasan P. R. Dery

11:30 AM

146.136

136 Barriers and Facilitators to Success Using High-Tech Augmentative and Alternative Communication (AAC) Devices with Children with Autism Spectrum Disorder (ASD): An Interview Study Examining Stakeholder Perspectives
N. Murphy J. McMAHON C. A. Murphy

11:30 AM

146.137

137 Building Better Bridges for Critical School Transitions of Underserved Children with ASD
J. Smith

11:30 AM

146.138

138 Can Theatre Increase Autism Acceptance? Evaluating a Performance Piece Developed from Stakeholder Stories and Delivered By Autistic and Non-Autistic Actors
A. Massa D. DeNigris K. Gillespie-Lynch

11:30 AM

146.139

139 Caregiver Perceptions of Insurance Coverage As Both a Barrier and Facilitator to ASD Resources
M. E. Villalobos L. DeLustro M. R. Klinger L. G. Klinger J. Stinson

11:30 AM

146.140

140 Mixed-Methods Approach to Understand Health-Related Quality of Life in Parents of Youth with ASD
M. E. Villalobos L. DeLustro J. Stinson M. R. Klinger L. G. Klinger

11:30 AM

146.141

Combining Anecdotal Observation with Scientific Discovery to Improve Translational Genetics Research in Autism Spectrum Disorders (Withdrawn)
O. Veatch J. Sutcliffe Z. Warren A. I. Pack B. A. Malow

11:30 AM

146.142

Depressive Symptoms in Siblings of Children with in African American and Caucasian Families (Withdrawn)
A. V. Hall R. Abramson M. L. Cuccaro H. H. Wright

11:30 AM

146.143

143 Examining the Social Validity and Outcomes of Clinically Replicated PEERS (R) for Young Adults, Adolescents, and Preschoolers Groups
R. M. Klinkel G. Lyons J. Gong

11:30 AM

146.144

144 Factors Affecting the Global Health Status of Children with ASD: An Analysis of Promis Pediatric Global Health Parent-Proxy Data from the Interactive Autism Network
A. R. Marvin P. H. Lipkin J. K. Law

11:30 AM

146.145

145 Factors Relating to Parent’s Decision of Treatment for Their Children with Autism in Vietnam
H. Vu

11:30 AM

146.146

146 Family Meetings Increase Recruitment and Engagement of Genetically Defined Communities in Simons Variation in Individuals Project (Simons VIP)
L. A. Cartner J. Tjernagel A. Daniels L. A. Green Snyder W. K. Chung

11:30 AM

146.147

147 Financial Impact, Quality of Life and Stigma of the Families of People with ASD in Uruguay in the Framework of a New Mental Health Law
V. Besio G. Garrido A. Rattazzi R. A. Garcia C. S. de Paula C. Montiel-Nava D. Valdez A. Rosoli S. H. Cukier M. Irrazabal

11:30 AM

146.148

148 How Autistic People Portray Autism on Youtube: Alternative Conceptions Trapped in a Digital Bubble
J. Pickens A. Arpaci P. J. Brooks K. Gillespie-Lynch

11:30 AM

146.149

149 How Does Temperamental Individuality Impact the Developmental Course of Symptoms and Maladjustment in Youth with Autism Spectrum Disorder? a 9-Year Longitudinal Study
L. De Clercq S. S. De Pauw L. M. Dieleman B. Soenens P. Prinzie

11:30 AM

146.150

150 Including Autistic Adults in Research to Develop and Evaluate Services Interventions: Lessons from a Long-Standing Academic-Community Partnership
C. Nicolaidis D. Raymaker

11:30 AM

146.151

151 Join the Fann Club – Results from an Interdisciplinary Network for Professionals on ASD in Females
M. L. Bezemer A. J. Mol A. A. Spek P. van Wijngaarden-Cremers E. M. Blijd-Hoogewys

11:30 AM

146.152

152 Latino Parents of Children with Autism: Understanding How Innovative Mobile Technology Can Increase Access to Care
I. Arriaga T. De los Santos K. E. Guardado A. Gulsrud D. Hayes-Bautista

11:30 AM

146.153

153 Lessons from Recruitment and Engagement of over 4,000 Independent Adults with Autism into SPARK, an Online Research Cohort
L. Grosvenor S. Ganesan A. Daniels P. Feliciano W. K. Chung

11:30 AM

146.154

154 Leveraging Pediatric Primary Care Systems to Address Disparities in Autism Diagnosis and Engagement in Services: Implementation of a Family Navigation Intervention
E. Feinberg A. Bennett C. Weitzman M. Augustyn S. broder-Fingert A. Chu J. Eilenberg Y. Diaz-Linhart I. Fernandez-Pastrana N. Blum

11:30 AM

146.155

155 Maltreatment and Autism: The Most Vulnerable of the Vulnerable?
M. H. Fisher R. Urbano A. Vehorn R. Epstein Z. Warren

11:30 AM

146.156

156 Multi-Stage Screening Process: A Clinical Psychology Perspective
A. S. Carter A. Eisenhower F. Martinez-Pedraza A. Fettig E. Frenette

11:30 AM

146.157

157 Narratives of Autism and Skilled Employment: Barriers, Facilitators, and Considerations in Professional Settings
D. Raymaker M. Scharer F. Gardiner S. K. Kapp K. McDonald C. Nicolaidis

11:30 AM

146.158

158 Parenting Stress in Families with Concerns about ASD in Toddlers Prior to a Diagnosis
T. DesChamps L. V. Ibanez S. R. Edmunds C. C. Dick E. A. Karp W. L. Stone

11:30 AM

146.159

159 Perspectives of Young Adults with an Autism Spectrum Disorder on the Use of Electronic Health Records in Research: The Balance between Privacy and Genetic Discovery
A. Edwards M. Raspa S. Andrews L. Turner-Brown L. Wagner R. Moultrie M. Frisch A. Alvarez A. Wheeler

11:30 AM

146.160

160 Pilot Data Findings: Connections between Low-Resource Parents of Children with ASD and School Providers Pre- and Post-Transitions between Schools
E. McGhee Hassrick S. Iadarola C. Friedman Z. Shamsi J. Chiappe L. Hauptman B. Bronstein A. R. Fitzgerald K. M. Carley D. E. Linares A. C. Stahmer D. S. Mandell P. Mundy T. Smith C. Kasari

11:30 AM

146.161

161 Quality of Life in Families of Young Children with Autism Spectrum Disorder at Intake
C. Mello M. Rivard A. Terroux

11:30 AM

146.162

162 Quality of Life in Families of Young Children with Autism Spectrum Disorder: Three-Year Follow-up
M. Rivard C. Mello A. Terroux

11:30 AM

146.163

163 Quality of Life of Parents of Individuals with ASD and Complacence with Services: A Study on a Large-n Representative Sample from Hungary
M. V. Molnar K. Stefanik M. Gyori A. Ábrahám Z. Borsos Á. Havasi A. Horhi E. Horváth T. Oszi Á. Szekeres

11:30 AM

146.164

164 Racial Differences in Quality of Life of Parents of Children with Autism Spectrum Disorder
T. Lavelle C. Mule

11:30 AM

146.165

165 Stakeholders Set Research Priorities for Neurodevelopmental Disorders: A Canadian First Facilitated By Ontario Brain Institute, in Collaboration with the Pond Network
E. Anagnostou J. Antflick R. Nicolson A. Iaboni M. Spoelstra J. Jordao C. Southward S. Kwan B. Andrade S. Lynch K. Cowan J. Mitchell

11:30 AM

146.166

166 Support Needs, Experiences with Services and Characteristics of Families of Children with Autism Spectrum Disorders.
B. van Gent J. P. Teunisse

11:30 AM

146.167

167 Symptom Recognition, Parental Help-Seeking, and Diagnostic Variation in Autism Spectrum Disorder
D. Schelly A. Ohl

11:30 AM

146.168

168 Systems Science Approach to Conceptualize and Analyze the Role of Screening
R. C. Sheldrick

11:30 AM

146.169

169 The Autgo Initiative: Building a Bridge between Genetics and Outcomes Research
Z. Talebizadeh A. Shah

11:30 AM

146.170

170 The Effect of Therapeutic Interventions of Children with Autism Spectrum Disorders on Their Parents’ Mental Health
T. Rehberger M. Macedoni Luksic A. Bezenšek

11:30 AM

146.171

171 The Importance of Addressing Heterogeneity in Autism Genomics Research to Inform Precision Medicine
V. W. Hu

11:30 AM

146.172

172 The Sociomateriality of Parent-Reported and Observation-Based Screening Tools for Autism Spectrum Disorders (ASD): A Sociological Investigation of Community-Based ASD Screening to Address Health Disparities
T. Mackie L. Ramella A. Cotroneo A. Eisenhower A. S. Carter F. Martinez-Pedraza R. C. Sheldrick

11:30 AM

146.173

173 Using a Patient Centered Outcomes Research Institute (PCORI) Approach to Engage Key Stakeholders on the Topic of Transitioning to Adulthood in Autism Spectrum Disorders (ASD)
S. N. Brasher

11:30 AM

146.174

174 “the Doctor Said ‘Google It’ …”: Exploring African-American Caregiver’s Help-Seeking for Their Child with Autism
T. Benevides P. Kearney E. DeGrace M. So B. Kelly

11:30 AM

146.175

175 Autism Diagnosis Stories: What Latino Parents and Caregivers Know and Believe
L. I. Florindez D. C. Florindez

11:30 AM

146.176

176 Raising a Child with Autism in India: Journey of Parents' over Decades
D. Taneja N. Singhal T. Behl R. Pradhan M. Barua T. Daley T. S. Weisner

11:30 AM

146.177

177 The Role of Family Rituals and Routines: A Resilience Perspective of Mealtimes and ASD
S. L. Curtiss

11:30 AM

146.178

178 Transitioning Pediatric Patients with Autism Spectrum Disorders to Adult Care
M. L. Massolo M. N. Davignon Y. Qian A. E. Richards L. A. Croen

11:30 AM

146.179

179 Trajectories of Maternal Depressive Symptoms Following ASD Diagnosis
A. Zaidman-Zait P. Mirenda P. Szatmari I. M. Smith J. Volden L. Zwaigenbaum T. Bennett T. Vaillancourt C. Waddell S. Georgiades E. Duku M. Elsabbagh